Generalized Pustular Psoriasis

Generalized Pustular Psoriasis

GPP (generalized pustular psoriasis) is a rare, lifelong disease. GPP can affect the body in many different ways and not everyone will experience exactly the same symptoms. There might be painful, pus-filled blisters (called pustules), along with red, dry, cracked or scaly skin, and severe itching.

GPP can also cause more general symptoms, such as fever, headache, or extreme tiredness.

The symptoms of GPP can be very challenging, no matter what stage of life you are at. If you’re experiencing symptoms that seem like those in GPP, it’s important to try and get a diagnosis as soon as possible. This will help you to get the right care for you.

ORDI Support Group Objectives

To promote Rare Diseases as human rights priority through public awareness.
To contribute towards development of Public Policy and take part in implementation, such as Rare Disease Policy and Orphan Drug Policy.
To collaborate with advocacy organizations from India, and people living with rare diseases; working jointly to connect them with national & international forums such as NORD, EURORDIS, RDI, Global gene, UDN, etc.
To accelerate diagnosis and treatment options for patients with rare diseases through public-private partnerships, and by advocating mandatory New Born screening·
To Facilitate & encourage Clinical Trials , Research & Orphan drug development activities.