ORDI (www.ordindia.in) is a national umbrella organization representing the collective voice of all patients with rare diseases in India, setup as a section 25 non-profit company in India.
Vision:
A better Life for people with GPP.
Mission:
Our mission is to provide support to GPP patients by facilitating information about GPP, to provide treatment at lower costs, create awareness about GPP and support patient advocacy.
Objectives:
- To create awareness amongst stakeholders like medical fraternity, industry and policy makers.
- Enable access to treatment and support system in India.
- To work closely with medical & scientific fraternity to accelerate diagnosis and treatment options for patients with GPP.
- To work closely with other stakeholders like international parent support groups.
- To support advocacy work to implement rare disease policy in India.
